Since I last blogged...
It’s been a year….
Lack of safety awareness = stress!
For most families it must feel such a simple thing, heading out a few blocks walk to the local shops to run an errand. In fact in such beautiful sunny weather like today it should be a pleasure...,2 children with learning disability, no safety awareness and sensory issues it's not that simple!As there was only…
Rainbows week 3…
Was a trip to the local Pizza Hut. Angel has been very excited about going to eat pizza with rainbows! Mummy was more nervous about leaving her... Will she sit still? Will she make a bolt for the door? Will she cope with the noise? Well 15 little girls and all the noise and she…
No blue badge for a learning disabled child is like taking away their freedom….
I have to admit to shedding a tear in front of Angel today.. Mummy's upset she says....why? We were sitting in the SMART (SouthEast mobility and rehabilitation technology centre) in Edinburgh having been referred there for Angel's blue badge assessment. She has had a blue badge for 3 years and it has transformed our ability…
Soldier’s voice #2
Soldier certainly made me laugh today, he may be non-verbal but he knows what he wants! I was recently updating his clothes for the summer, I thought lets be bold and get something a bit different from his navy, denim and beige trousers. Well if going to be bold lets not do it by half,…
A diagnosis, so why so confused??
Yesterday our world was turned upside down again! We turned up for a routine appointment for Angel to find out we had results for our Soldier from a leading edge genetics study of developmental disorders that Soldier has been part of for 3 years. This study is called DDD (deciphering developmental disorders) and holds the hope…
Not a budding children’s author with my nightime writing!
For nearly 2 weeks over Christmas we had to stay up at night and watch Angel sleeping in case her tonsils blocked her breathing until she had her tonsils removed on 3 Jan - that's a whole different blog! How do you stay awake?? Well I decided to enter a mumsnet competition to write a short…
Heartbreaking loneliness
I have to admit to feeling like a bad parent at the moment..... Our Soldier has started to show some interest in interacting with our Angel but in true autistic style he much prefers his own company and in fact really struggles in normal noisy children's company and takes himself off to a quiet spot.…
The truth about tiredness…
How many times have I heard friends moan they are tired as their little one has been up during the night sick or is having a phase of being up during the night... Regularly I take a deep breath whilst thinking 'if only...' I hope one day that never actually slips out! After all, relative…
Happy New Year
We wish you a merry Christmas, we wish you a merry Christmas, we wish you a merry Christmas and a Happy New Year!! As I embark upon sharing insight into our lives with you, our family, friends and followers a quick look back at 2013 by way of introducing ourselves.... In true Ali (that's me)…
the angel and the soldier 