A step into mainstream

What a lovely phone call to receive this evening. Angel has a place at one of our local rainbow packs! Max 15 girls in a local school 10 minutes walk from our home, I couldn't be more delighted! Our first experience of a local pack wasn't great - a 'closed shop' so Angel wasn't welcome,…

No blue badge for a learning disabled child is like taking away their freedom….

I have to admit to shedding a tear in front of Angel today.. Mummy's upset she says....why? We were sitting in the SMART (SouthEast mobility and rehabilitation technology centre) in Edinburgh having been referred there for Angel's blue badge assessment. She has had a blue badge for 3 years and it has transformed our ability…

Soldier’s voice #2

Soldier certainly made me laugh today, he may be non-verbal but he knows what he wants! I was recently updating his clothes for the summer, I thought lets be bold and get something a bit different from his navy, denim and beige trousers. Well if going to be bold lets not do it by half,…

A diagnosis, so why so confused??

Yesterday our world was turned upside down again! We turned up for a routine appointment for Angel to find out we had results for our Soldier from a leading edge genetics study of developmental disorders that Soldier has been part of for 3 years. This study is called DDD (deciphering developmental disorders) and holds the hope…