So SWAN UK is 10 years old! 🎶 Happy Birthday to you A wonderful crew Happy Birthday dear SWAN Without you what would we do!! 🎶 Who they? Those that know me don’t need to ask. My best friend even ran a marathon for them. When you have an undiagnosed child (or 2 like us)…

As your kids grow up they should get stronger, more capable, more resilient.... but not always... We were told when Angel and Soldier were young and we had no idea what was causing their delayed milestones that their path was not known. Then again when we found out the gene flaws causing their issues that…

It’s a few years since I shared in this blog. Angel and Soldier are now young adolescents and life is definitely taking a new path. Both are in High Schools and we are navigating our way through the COVID pandemic like everyone else. Me, my thoughts are turning to adulthood. I’ve started a degree in…