Yesterday our world was turned upside down again! We turned up for a routine appointment for Angel to find out we had results for our Soldier from a leading edge genetics study of developmental disorders that Soldier has been part of for 3 years. This study is called DDD (deciphering developmental disorders) and holds the hope…
Soldier’s voice #1
As many of us with kids on the autistic spectrum know there are so many different views of autism especially non-verbal autism. Some schools of thought are that children who present with autism, are non-verbal and appear to have severe learning disability are just that severely mentally impaired. Other schools of thought are that the…
Not a budding children’s author with my nightime writing!
For nearly 2 weeks over Christmas we had to stay up at night and watch Angel sleeping in case her tonsils blocked her breathing until she had her tonsils removed on 3 Jan - that's a whole different blog! How do you stay awake?? Well I decided to enter a mumsnet competition to write a short…
Heartbreaking loneliness
I have to admit to feeling like a bad parent at the moment..... Our Soldier has started to show some interest in interacting with our Angel but in true autistic style he much prefers his own company and in fact really struggles in normal noisy children's company and takes himself off to a quiet spot.…
The truth about tiredness…
How many times have I heard friends moan they are tired as their little one has been up during the night sick or is having a phase of being up during the night... Regularly I take a deep breath whilst thinking 'if only...' I hope one day that never actually slips out! After all, relative…
Pls come to lunch, it’ll be lovely to see you all…..
That kind invitation to something that should be enjoyable and in the past would have been met with 'great looking forward to it' is still met with 'great looking forward to it' whilst underneath I am having lots of other conflicting thoughts: What is their house like? Are the outside doors secure? does it have…
Happy New Year
We wish you a merry Christmas, we wish you a merry Christmas, we wish you a merry Christmas and a Happy New Year!! As I embark upon sharing insight into our lives with you, our family, friends and followers a quick look back at 2013 by way of introducing ourselves.... In true Ali (that's me)…
the angel and the soldier 